Michael and “Shakey” Make Great Partners in the Fight Against Cystic Fibrosis

When she learned that her son had cystic fibrosis, mom didn’t know much about the disease. Today, the Jones family advocates for finding a cure. 

Traci Jones vividly recalls the 9 a.m. phone call from her pediatrician’s office just nine days after her third child, Michael, was born in 2014.

“We have Michael’s newborn screening results,” said the clinician. “We need to see you at 12:30 this afternoon.”

Accompanied by her mother, a nurse, Traci recalls very little from the 40-minute visit with her pediatrician.

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Be a Champion for Kids: Listen to the 2015 Radiothon

Benjamin_AFCH_surgeryIt came up in my Facebook feed this weekend, and the timing couldn’t have been better. Have you noticed those “On This Day” flashback notifications, reminding you of what happened in your social world on this date a year or more ago?

So grateful for a smooth morning spent just playing with helicopters and trains (and getting ear tubes), and for the awesome doctors, nurses and Child Life staff at American Family Children’s Hospital who made everything go so well!”

That’s what I shared on Facebook two years ago, along with a picture of my then-2-year-old son Benjamin happily hanging out in his post-op crib, with the American Family Children’s Hospital sign greeting us outside our window.

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The 2014 Radiothon: Listen and “Like”

My Radiothon checklist:

  1. A laptop: To chronicle the inspiring stories of courage and hope told by our young patients, families and staff of American Family Children’s Hospital
  2. Double espresso: To take the edge off the 6am start – and to catch up with all the energetic little ones chatting with the DJs, Fish from 93.1 JAMZ and Jackson and Ashley on Today’s Q106
  3. Waterproof mascara: Because those beautiful kids (and their incredible moms and dads) move me to tears!

As both a mom and a member of UW Health’s web team, it’s an honor to participate every year in the Radiothon, the biggest annual fundraiser for American Family Children’s Hospital. For three 13-hour days, from May 7-9, DJs from Midwest Family Broadcasting’s Today’s Q106 and 93.1 JAMZ will broadcast live from the children’s hospital lobby.

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